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Portraying Cystic Fibrosis

Portraying Cystic Fibrosis

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Excuse me the rude headline. Portraying a disease is something for medical literature. What i’m really interested in is how a disease affects our daily lives.
That is what is visible in this serie from photographer Kyle Monk.

Kyle is working with the CF Foundation creating portraits of people with Cystic Fibrosis to help bring awareness to this genetic disease.

Cystic fibrosis (CF) is an autosomal genetic disease affecting most critically the lungs, and also the pancreas, liver, and intestine. It is characterized by abnormal transport of chloride and sodium across epithelium, leading to thick, viscous secretions. CF is most common among Caucasians. [Wikipedia]

Kyle chooses to photograph children with their nebulizers and other medical instruments. Airway clearance techniques (ACTs) and nebulizers are treatments that help people with CF stay healthy and breathe easier.
What really gets me in this series is the resignation of the children. They know the clearance techniques brings them relief but they don’t look happy.
That’s what good photography show us: the story behind.

Kyle at wonderfulmachine.com:

This sounds cliche, but interacting with these kids, teens and adults made me realize how fragile life is. Sometimes I take it for granted and get caught up with day-to-day things only to lose track of the big picture. The CF community made me realize I need to slow down and appreciate what I have. These individuals’ health may be delicate, but their spirits are strong, something we should all strive for.

More photo’s after the break.
See the entire serie at the website from Kyle Monk.

Hat tip to photography blogger Constantin from oitzarisme.

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