In 2011, Irish couple Mary and Tony Heffernan lost their five-year-old daughter Saoirse to a disease you’ve probably never heard of: Battens Disease is an extremely rare inherited disorder of the nervous system that is almost always fatal. Tragically, Tony and Mary’s three-year-old son Liam is also afflicted.
The Heffernans found very few resources on Battens Disease when their daughter was diagnosed, and founded Bee for Battens: The Saoirse Foundation to assist families like their own. Battens Disease is so rare, many doctors are unaware of it.
“A True Story” is an emotional 45-second video created to support the foundation’s “online campaign for raising awareness & supporting those affected by Battens disease.”
The illustrations and animation were created by artist Mick Minogue. Director Albert Hooi then digitally arranged hundreds of photos against music by singer-songwriter Lisa Hannigan. I like the nostalgic, arts & crafts feel. Like any good true story, it moves the audience. When I passed this video around, everyone visited the website to learn more.
Last month the Heffernans received the news that despite experimental brain treatment, Liam’s condition will continue to deteriorate.
Bee for Battens
Voice Over by : Saidhbhe O’Shea
Shot and edited by Albert Hooi
Illustration and animation by Mick Minogue
Music By Lisa Hannigan – Song Lille
(P) and (C) Lisa Hannigan Hoop Recordings: Permission